Habu

Wednesday, June 1, 2011
Kate called Harry "Habu" when she first came home from China (even though she could say Harry) and it has kind of stuck as a family nickname. We all call him Habu in a very affectionate way now.

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The past 2 days were rough on our Habu.  The prep was really hard.  There was a complication with his colonoscopy that requires further testing. And we need to rule out something neurological based on another bizarre finding.  

He came out of general anesthesia with a killer headache and needed two doses of morphine.   Then the headache came back last night when the morphine wore off. My heart broke for him.

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The worst part is that we thought this was the end of all the testing but it only brought up indications for a little more testing.  Harry is kind of mad at me about that.  He says I lied to him.  I never imagined this would lead to more testing.  I thought we'd have answers not more questions. We are kind of in a holding pattern until pathology comes back with the biopsy reports too.

As nervous as I am about the two possibilities that we need to rule out, I know Harry will be fine.  God gave our little boy a certain kind of leadership and charisma that cannot be described in words.  But people see it in him.  He touches people.  The nurses and doctors adored him. And one diagnosis is not going to change who God designed him to be.

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47 comments:

  1. Bless his heart and yours!! Sending prayers your way!!

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  2. Kim, I am so sorry that you all must go through this. So hard and it is hard to see such a kind and lovable kid have to endure so much. I think this would be hard and traumatic for any adult! Your little mister is really brave. A great example to us all! I will remember him in my prayers.

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  3. Oh Kim, I know how hard it is on Momma when one of your kiddos are sick or hurt. I pray that you guys get the answers you need and Harry can get on his road to recovery. Praying for your sweet son and you to my friend!

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  4. Oh sweet boy....Kim I am praying for Harry and the answers you need...what a little trooper. I am so sorry his little body has to be put through so much...xoxo

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  5. Poor little guy! I hope that the next tests aren't so difficult for him!! Will be anxious to know if they find the root cause for all of his problems...

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  6. Thinking of sweet Harry. I hope he is feeling much better soon and that you get some helpful answers from all of his testing.

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  7. Poor Harry. I can only imagine how hard this must be on him. I am thinking and praying for you all...

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  8. God be with you and your family during this time.

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  9. I am praying for speedy and helpful answers for Harry. I am so sorry you all have to endure this.

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  10. I am so impressed with how grown up Habu is . He tolerates way more than most adults I know. God is building character in Harry for great things. Big prayers to all:)

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  11. So true. Your faith throughout this process is inspiring!

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  12. Harry you amaze me more and more with each post that your Mom post about you. You are truly a strong, intelligent, determined and brave young man. Despite it all, you maintain your confidence and that beautiful smile!!

    Keep smiling honey, you are my newest hero!!

    For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future. – Jeremiah 29:11

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  13. Poor kid! You all have my prayers and I hope they figure out what's going on soon!

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  14. praying for you all,hope you get some answers soon. God has a special place for this little boy:)

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  15. Praying for your sweet boy.

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  16. I could not agree more with the comment right above mine from "snekcip".

    God does know the plans perfectly and it is to give you hope and a future.

    Your family is amazing and well, Harry are brave, period! Enough said.

    Many hugs and prayers your way my friend.

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  17. Praying for you and Harry, Kim - for peace and comfort, and "fixable" results. Please keep us posted.

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  18. thoughts and prayers with Habu!! I hope your questions get answered and he can go enjoy his summer!!!

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  19. Harry!
    Great big hugs from MN!!!!!!

    You are right Kim!!!! Nothing will change the amazing child, friend, and son Harry is! I have no doubt that nothing is going to slow Harry down!!

    Praying for you!

    Love
    Diana

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  20. I hope your handsome Habu is feeling better soon. The poor little guy!

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  21. Aww, you are an amazing Momma. And what you say, is so true - God made him amazing. Period.

    Jill

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  22. Please let Harry know that we are praying for him and LOVE him!

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  23. Poor guy! Hope he feels better soon and the doctors can get to the bottom of whatever is going on. What a trooper to go through so much!

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  24. Hi Kim,
    You don't know me, but I have followed your blog for a while. I have many clients who have gone/are going through exactly what you and Harry are going through (including patients who work with Dr. K). It is tough! I want to recommend that you connect with Judy Converse, an excellent nutritionist and dietician who specializes in children with very complex GI issues. She will be able to provide you with invaluable assistance as it relates to diet, nutrition, and working together with the medical team to best support Harry's growth and development. Her website is http://www.nutritioncare.net/. If there is anything I can do for you don't hesitate to ask!

    Take Care,
    Nicole Beurkens

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  25. Poor Harry! But I love how you wrote that the diagnosis is not going to change who God designed him to be. So powerful and true!

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  26. Carrie said what popped into my heart: bless his heart as he tries to wrap his head around this experience, and god bless you as you shepherd him through. Well wishes for you all.

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  27. Oh gosh, this just made me feel so horrible for Harry. What an ordeal to have to go through at such a young age. I pray they find whatever the issues are SOON so he can stop having to be tested and get on the road to healing!

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  28. I just have to tell you my husband graduated college at 5'3". They did bone scans and tested him for everything imaginable. He was tested for many many horrible things and his mother was informed he might never be "normal."

    My husband grew A LOT after high school. He is now 6'3" and as healthy as can be. He is in impeccable shape and no one would ever be able to tell there was EVER anything wrong with him.

    Once he grew doctors just told him he hit puberty late.... the man is just now starting to grow chest hair and is about to hit his 27th birthday.

    I pray Harry is just a late bloomer like my husband. Sure he has a few scars from the torment he endured from other kids but that made him an AMAZING person and I know now he wouldn't change what he had to go through for anything, it made him who he is.

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  29. God bless. Prayers be with you and your amazing son. What an inspiration he is.

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  30. Aawww....I'm sooo sorry for Harry. It's such a shame that he has to go through all this 'nonsense', as he would call it. But, I hope it means that the 'things' will be ruled out, not in. Hang in there, Habu!!!

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  31. Thank you for all the kind words and well wishes. Brittany, Thank you for sharing your story. However, all of this testing is not being done because of Harry's size. It is due to health issues. His small stature may or may not be related. He has stomach problems they need to pin point.

    Kim

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  32. Medical testing is so very stressful. Our prayers will be with y'all, especially Harry.

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  33. Oh, Kim, poor little guy. My thoughts are with you, and I pray all results come back negative.

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  34. Keeping Harry and all of you in my prayers. Medical issues can be so frustrating. Take care.

    Janet

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  35. I am sending many prayers for Harry and for you all. He is resilient! You can see it in the twinkle in his eyes.

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  36. My heart about broke thinking about Harry not trusting you because you didnt know! I am so sorry!! What a good time to talk to him about how we (humans, parents, doctors) are all fallible! We are not perfected until the day we die and we are perfected in Heaven! Bless his sweet heart! Hope he gets to enjoy some time soon where he is feeling good!!

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  37. I'm sorry your boy has to go through all this. It's so hard to watch your children suffer, I'd cry too, if one of my kids had a horrible headache like Harry did. I pray that you'll get good results and find a good way to treat his medical issues. And my favorite prayer: Angel of God, my guardian dear to whom God's love commits us here, ever this day be at my side, to light, to guard, to rule, to guide.

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  38. I know how hard it is when your child is not feeling 100% Know that you all and especially Harry are in my thoughts and prayers. Such a strong, sweet boy. Hugs.

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  39. I didn't at all think it was to his size nor was my husbands entirely. He had A LOT going on growing up health wise that was just really the only thing they could pin down... he had problems with different foods and gaining muscle and there was no real explanation for any of it at all. For what I understand he was constantly sick as well. He went through many tests and nothing could ever really be determined. The reason I shared his story was because he grew out of it. It took until he hit about 20 (when I said college I meant to say high school.) It was just like everything was miraculously better and all prayers were answered. To this day he has never had any answers as to what he went through growing up or why he had all those issues but now we don't ask since he is literally the healthiest person I know.

    Sorry I didn't mean to make it sounds the way I did and I probably could have worded it a bit better. I went back and read it and realized I didn't exactly get the point across I meant to.

    I hope you do get answers but I also pray that maybe this is something Harry can grow out of as well.

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  40. Still praying for you all and hope they can find a solution...

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  41. Oh Honey... I have not been able to visit blogs much lately and I had no idea all of this was going on. I am so sorry. Hold on to what you know is God's will for your precious Harrison. I know he will not be mad at you for long... his heart is just too sweet for that.
    I will be praying my friend.... please know I am here if you need me or if there is anything at all I can do.
    Can't wait to read your post of God's miracle in Harry's life!
    Love you and praying,
    Daleea

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  42. I am so so sorry that you are all going through so much! I am thinking of everyone and sending good thoughts and prayers your way...especially Harry, he is so brave!

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  43. My heart just breaks for him, and I hope they figure it out soon. All the waiting and testing is sometimes the worst part. I'll definitely keep Harry in my thoughts.

    About a year before my first daughter was born, I got very sick - to the point where I couldn't eat anything beyond chicken, rice and broth - for 4 months. After many, many, many tests, the doctors couldn't figure out what the problem was...but overtime I ate, I would experience the sharpest pain in my abdomen that I had to stop. It comes back every spring and pretty much lasts all summer through the start of fall. I know the foods that trigger my sickness, so when I feel like it's starting to come on, I have to manage my diet accordingly - otherwise I end up on the chicken/rice/broth diet again.

    To this day, they still don't know what's wrong with me or why it happens, but I stopped working the year that I got sick and it's never been as bad as that first year so I think, for me at least, stress definitely made it worse.

    I'm not quite sure what Harry's going through, and I know going through something as an adult is VERY different than a child going through something, but he's not alone. Whether it's through thoughts and prayers or people who have had similar experiences.

    And hang in there, I know it's tough to see your child in pain, let alone in the hospital. I'll never forget Babes' overnight stay.

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  44. Hey,
    Just wanted to tell you i love your blog. I think i want to be you when i grow up.
    I have a daughter with celiac or gluten intolerance. They are not sure. Anyway lots of heart ache. But i just did this great test call Alcat. It is a blood sensitivity test for over 250 foods. I might do it with her now too but it showed all sorts of information. It would be worth it to see if you could look into it. It is done by a group here that is more cutting edge and not so traditional. So just thought you might could try it. Hope he is feeling better and happy birthday to your precious daughter!

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Thank you for your kindness.